Wednesday, April 2, 2008

great news!



Here's the focus of daily life for us right now... our little area in NICU. I didn't end up getting to hold Katie last night because of a small setback, though I did get to touch her. She'd had some retractions, where she was sucking in really deeply to try to breathe and they ended up bumping up her O2 levels to 30% again. They also decided to administer viagra.



A night's worth of treatment worked wonders (as any old man would agree, I'm sure!) and this AM's chest xray and electrocardiogram revealed that the "tension levels" of her veins had relaxed down to 32 (remember we're shooting for mid-20's.) So that gave us quite a bit of hope, but the nurses were still talking about not even starting her in a crib or removing her from O2 until this weekend. The pictures you see here are from around noon, when we both got to hold her for a few minutes. The blue tube you see is the O2 tube that's normally plugged into her hood. The thin tube to her mouth is the OG tube that extends down into her stomach and allows gasses to flow freely out without disturbing her. The pink blob is her hand, swathed in bandages to hold an IV in place.



The day got even gloomier when we discovered it wouldn't be possible for me to stay in the hospital any longer. I was to be discharged in late afternoon, at which point we'd have to say goodbye to Katie and drive an hour home with heavy hearts. While I know she's in great hands, I just hated the thought of being so far away. I did pretty well until I really started thinking about that goodbye and then I just lost it. Not long after, the attending neonatologist stopped in and made the surprising announcement that he had decided to put her in a crib and they'd removed the O2 hood and she was now breathing with the assistance of just a small O2 line under the nose!



They've removed the OG tube from her stomach, and best of all, the Doc said we could begin nursing attempts after the shift change at 4! WOW! What a rollercoaster ride! We'll see how well she tolerates this new change. While I was there after 4, we did see some "singing" (imagine sweet little baby grunts to try to open the aveoli in her lungs) but cross your fingers that it's a temporary thing.


Our nursing session was totally unsuccessful. She has a lot of interest in sucking, and takes the breast well, but doesn't seem to remember what to do with it once she has it. Apparently it hasn't occurred to her to clamp down, and she spends her time getting frustrated with what the heck she's supposed to do. She's happy to suck on my knuckle, and sometimes will take a pacifier, but seems baffled by a boob.

I'm hoping for some advice from a lactation consultant soon. In any case, I got to hold her for almost 2 glorious hours. She's now dressed in a sleeper and wrapped up like a baby burrito in a blanket. I'll go back in at midnight tonight to give it another shot. Incidentally, I'm not officially IN the hospital anymore, but instead was discharged at about 6pm. However, due to the desire to breastfeed, they have graciously allowed me to stay overnight in my old room on my own, assuming they don't fill up and need it. I suppose I could be kicked out at four am... but it seems pretty quiet around these parts and I see a good 5 or 6 rooms open at the moment. Tell the pregnant mamas of western SD to stay gestating!

Tuesday, April 1, 2008

Our baby girl is HERE!



First, the good news!
Katherine Bodhi Gray (tentative name)
born 3/31/08 5:09pm
21.5 inches long
9 lbs 13 ozs


I'm afraid I don't really have any great close up photos. We've been pretty busy round these parts and only have what our doula snapped directly after the birth. Hence the baby you see in these photos is still pretty gooey. You'll have to just trust us that she's beautiful for now. Tonight I hope to get the chance to hold her again, and I'll see what I can snap without disturbing her too much.

Labor was AWESOME! My water broke at around 2:30 Monday afternoon. I called Josh home and we didn't exactly run to the van, but we didn't piddle around much either. By the time we left, contractions were about a minute long but only a minute apart. But the time we hit Blackhawk (about 20 minutes outside of Rapid City where our hospital was) my contractions had turned into pushing. I just tried to chill and let my body do the work to prolong things as much as possible. I began active pushing as soon as we were in our room, and she was born 15 minutes later at 5:09. Lets hear it for SHORT labors! Whew! I figure that mom, dad and baby made a pretty outstanding team!

The bad news!

Katie developed some trouble breathing a few hours after birth. At first it presented itself as "singing" or grunting as she drew in each breath. From there it progressed to a lot of retractions and even some desats. Retraction is fairly obvious-you can see the baby's chest and stomach sucking in deeply for each breath. Desats are short for desaturation of the blood. Normally, practitioners like to see oxygen saturation levels in the 90's and there were times when her O2 levels would go down into the low 70's, and she would grey out before coming back up to higher levels. Her breathing wasn't consistent-she had some hitches and pauses. They transfered her to the Neonatal Intensive Care Unit at about 7pm for observation, and by 1:30am they hadn't seen any improvement in her, so they decided to put her on oxygen and start a round of antibiotics as they were concerned about the possibility of Group B Strep (GBS) infection. The round of antibiotics has earned her a three day minimum stay in ICU. They also ordered a battery of blood tests, cultures and x-rays.

Here is what we know now. Three different rounds of testing for white blood cell production show that her levels are elevated, but seem to be tapering off. We tentatively think this indicates that the production is due to stress, not infection. An additional test looking for inflamation in the body (also a sign of stress) seems to back this conclusion up. It takes 3 days for the GBS cultures to come back with preliminary results of infection, however, so we won't be sure until then.

An initial chest x-ray indicated some fluid in the lungs and a repeat x-ray this afternoon showed an enlarged heart. An electrocardiogram revealed that the enlargement was due to pulmonary hypertension, and NOT some dreaded defect in the heart itself. There is one area of the heart that hasn't closed as it should have, but they are expecting this to resolve on it's own in the next few days.

The heart itself is enlarged due to interuterine stress that has probably been going on in the last few weeks of gestation. Exactly what may have caused this is hard to say, but is apparently "commonly" seen in larger babies. The pulmonary hypertension is what is most likely causing Katie's breathing problems. It's been dumbed down for us and explained like this: The tiny aveoli in her lungs lie next to veins and capillaries. As she breathes in, O2 transfers from the aveoli into these veins and capillaries. The most efficient way for this to happen is if the veins are loose and open, lying closely against the aveoli so that a good transfer can take place. In Katie's body, however, the veins are constricted and lying further away from the aveoli, the body isn't making efficient use of the O2 coming into her lungs and she is forced to work much harder to saturate her blood stream.

We were hoping to see a bit more improvement in her this afternoon so that they might be able to wean her down a bit more from her O2. She had been doing well enough that they were only giving her a mixture of 26% O2 (room air is 21%) but she had some further setbacks early this evening. So, I beleive they are bumping her back up to 30% and have decided to begin actively treating the pulmonary hypertension with a drug. What drug you may ask? Brace yourself! Viagra. Yup! That's right! Viagra works to open up blood vessels, capillaries, and veins to allow the area to fill with blood more easily. What works for old men also works for little girls!


What is most discouraging about this is that while we got a wonderful nursing session in last night before these problems started, we haven't gotten to hold our girl since then. Essentially, we haven't had more than about two hours to get to know her. Stroking your sleeping baby's head around an IV in her hand, an OG tube down her stomach, three different sensors on her chest and abdomen, and another sensor measuring skin temp is a lot different than cuddling her and gazing into her eyes. In fact, they don't even really recommend that we touch her at the moment, as it just disturbs her into a more shallow sleep that prevents a deeper healing. We aren't hurting her when we do, but they don't really feel we are helping either.

I'm struggling to find a balance between what I see as an honest and basic need for her to have human contact and touch and a chance for her to rest and get her poop in a group. How much time should I spend in there with her? Am I a bad mother for staying away or am I doing the right thing? Fortunately, the NICU nurses have been pretty understanding. Guilt... the unavoidable baggage of parenthood. I've struck a balance so far by trying to be with her at the scheduled times when they will be checking her stats and changing diapers anyway. That way, I can sneak in some cuddle time, but it will be during points when she is already being disturbed-that way she's getting the maxium amount of rest in, and I still feel like she (and I!) are getting at least a bit of basic bonding time.

I'm extremely grateful to have gotten in some good nursing last night just after labor. She was a very hungry little girl, and latched on both sides for a good 20 minutes each followed by an additional short session later. Hopefully, that established a foundation for nursing later, and gave her a chance to snatch up some colostrum. She's recieving fluids, nutrients and fats through an IV. They really don't want to jeapordize her breathing by trying to have her suck at this point. For now, I'm pumping and saving every single drop of colostrum I get for when she CAN have it.

Shift change is almost over, and I get to go hold my little girl now. Our intentions are to post updates here, so check back over the course of the next few days to learn more.

Tuesday, March 18, 2008

Purty!

My belly is big...



But it's purty!

Wednesday, March 5, 2008

35 weeks... or could it be 37 weeks?!?


I must have reached maximum capacity. I don't see a whole lot of changes in growth over the past few weeks.

Why the discrepancy in dates? Well, you're witnessing the special kind of desperation that all women go through when they reach this point in the pregnancy. Oh and the name for this point? It's called HELL.


Most caregivers will measure a woman at each appointment to check for consistent growth in the baby. For the last month and a half, I've consistently measured two weeks ahead of time. At my last appointment on the 25th when I was 34 weeks, I measured SIX weeks ahead. yeah, that's right... I was measuring 40 weeks-full term. Now that's not crazy- the baby could have been in a different position, I was getting measured by a different person... all kinds of things might account for it. A quick ultrasound estimated us at 36 weeks (again with the two weeks ahead.) Now, ultrasounds aren't super on when it comes to estimating by this stage of development either. So in reality, we don't know THAT much more than we did. But the desperate preganant woman still likes to THINK she's 37 weeks, ya dig?

Sunday, February 24, 2008

Thirty Four Weeks






Still here. Still pregnant. Still Big.

Tuesday, February 12, 2008

32 weeks


Am I bigger? Can we fit 8 weeks more of growth in here? Sorry about the door shadow! I was anxious to see a side by side comparison...

Thursday, January 31, 2008

I Dunno People....

Tonight at knitting night, I confessed I thought I might already be as big as I was at 39 weeks pregnant with Lizzie. I was promptly assured that I wasn't. I couldn't be THAT big yet. So, for those of you who haven't been keeping track, tomorrow I'll be 31 weeks. Here's a comparison shot.
Here I am tonight.

Two days before Lizzie was born 5 years ago.


While this baby might be carrying a bit lower tonight, I don't think there's a huge difference in size. Am I wrong?